India is in surgery now. As always, she was scared and wanted to go home.
Tuesday, February 18, 2014
Monday, February 17, 2014
Day 30 In Boston - Post Surgery - A Song Brought Her To Tears
Yesterday, two beautiful friends of my Buddhist Nun sister "Kelsang Dechok" who are complete strangers to India and I drove to Boston from Rhode Island. Angela and Jason came to meet India to give us some emotional support.
Well... they brought good will, a guitar and bracelet making material; the result was amazing.
Long story short, after a beautiful charm bracelet was made with the help of Angela and shortly thereafter being proudly worn by India (to this moment) - Jason sang songs.
I've never seen my child react the way she did today.
India wept happy tears, smile on her face, as her cheeks regained color for the first time in weeks. I kneeled on the floor watching as my bed ridden daughter moved her head back and forth to the rhythm of Jason's touching tunes.
Angela and Jason took my India from her undeserved hospital bed today to a truly beautiful place in her mind; she was given the gift of respite. All of us who watched were deeply moved.
India has been confined 22 days to her mechanical bed with attached devices that flash and make various "beeps"; day in and day out.
India is awoken every hour by strangers who put fluids and pills in her mouth and arms. The result is my daughter's spirit and personality being reduced to nothing more than blank stares and exhaustion at times.
However, today India again was blessed with something beautiful and at the hands of stangers.
And right now, she is in a rare and much needed deep sleep.
db
P.S: If you look at the lower photo, you'll see my "Baby Girl" is crying.
Saturday, February 15, 2014
Day 28 In Boston - Post Surgery - A VERY Cool Visit From The Good Doctor.
India's good pal Sherri made a surprise visit. She flew in from Denver last night dressed like a doctor, her face hidden behind a surgical mask.
I'll let the video tell the rest of the story.
Friday, February 14, 2014
Day 27 In Boston - Post Surgery - She Is Famous!
CNN came and did a segment with India and "Tucker" the "therapy" dog.
India was so happy...
Thursday, February 13, 2014
Day 26 In Boston - Post Surgery - CNN
Tuesday, February 11, 2014
Day 24 In Boston - Post Surgery - A Humble Request
I'm wanting my wife and children to come be with us because I believe it will be a huge boost for India's spirits if her siblings are running around her hospital room making a bunch of noise; bringing smiles to India's face.
India has been in the same hospital room for over 2 weeks and now will most likely double that; not including rehab.
India and Nikki
India and Marion
India and Abbie
India and Vikki
If anybody has any extra frequent flyer miles, I'd be grateful beyond words.
I'm humbled to make such a request but - here I am.
Thank you for your consideration.
https://www.youcaring.com/medical-fundraiser/she-doesn-t-deserve-this/114808
Day 24 In Boston - Post Surgery - "2nd Attempt Off Of Traction"
India and I started the day hopeful again despite the unthinkable just hours before. We wake up each morning with hope despite a darkness most can't fathom that follows us like a shadow.
I know this sounds incomprehensible, but "by the grace of God", most never experience what India and I do.
Imagine holding your child's head pressed against yours as you sing, hum, or talk about beautiful times as you're trying to give comfort to your "baby" while your child screams in pain; shaking.
All the while, the tears of your child mixes with yours; burning your eyelids.
Then your child's saliva begins to drip into your mouth from their frantic screams and you can taste their fear and pain in a way most never do.
Think about having to feel your child's sweat from the pain that is so intense that it saturates the clothing and bedding; being mistaken for urine by the nurses and doctors.
What about holding your child as she or he trembles and begs for help as the nurses and doctors are calling a "stat" because of a critical situation; with "your" child. Feeling the panic and fear while your child looks into your eyes asking for help over and over.
This has been our life before and has now been for the past two days.
This is our day today and many days before and nobody deserves this.
Any help would be greatly appreciated.
https://www.youcaring.com/medical-fundraiser/she-doesn-t-deserve-this/114808
Day 24 In Boston - Post Surgery - "1st Attempt To Remove Traction"
Two weeks ago yesterday, Monday January 27th, 2014 - India had her hip/femur surgery at Harvard Boston Children's Hospital.
Yesterday morning, we took India off of her traction. Everything went well. India was making jokes with the nurses and talking nonstop about marrying Daniel.
A few hours later, I went to get India lunch. Just as I was getting back to the hospital a nurse calls me and says "not an emergency but that I should get back ASAP".
The minute I entered the room, India started sobbing and grabbed onto me asking for help; she was in a lot of pain. I tried to sooth her every way I could think of, including handing India a photo of her boyfriend "Daniel". She put his picture against her lips, kissed it and then started crying again.
http://moomock.blogspot.com/2013/06/beautiful-love-may-24-2013.html
The nurses gave India pain meds. When that didn't work, they called a "stat" with the Orthopedic team. The Orthopedic team quickly put India back in traction and her pain eventually stopped.
The doctor said they need to keep India in traction for another week.
India went to bed holding Daniels photo.
https://www.youcaring.com/medical-fundraiser/she-doesn-t-deserve-this/114808
Sunday, February 9, 2014
Day 22 In Boston - The Day Started Good But Ended With Some Pain
India was a happy camper today until about 5:00; when the pain kicked in.
I'm grabbing India some good dinner, will get her super cozy and we will watch "Mamma Mia" for the 5th time today.
Tomorrow is going to be a rough and painful day. The doctors are going to try to remove her traction.
I'm keeping my fingers crossed that it goes smoothly.
We are grateful for any donations.
Friday, February 7, 2014
Day 20 In Boston - Bring On The Clowns!
So India and I were just finishing up her lunch when we had some unexpected guests; CLOWNS!
My little girl went nutz and laughed harder than I've seen her laugh in a long time....
Harvard Boston Children's Hospital is a great place.
The visit with the clowns was beautiful and made my little girl very sleepy.
We are grateful for any assistance.
Thursday, February 6, 2014
Day 19 In Boston - Update and Operative Notes
The doctor is going to do an evaluation this coming Monday to see if India can be taken off her traction. If she can, then next Wednesday the pins in her knees will be removed and physical therapy will begin. If she can't come off the traction then they'll keep it on for another week.
If it were up to India, she'd be off the traction in the next 5 minutes and we'd be headed home for some chili.
Below are the x-rays and Operative Notes that outline what she went through in her surgery:
Wednesday, February 5, 2014
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