Day 69 - UNM Hospital, A Rough Night Again...

India had a bad night again. It seems like every time we see a light at the end of the tunnel, it's followed by serious darkness.

She had steady pain from 10:00 pm until about 8:00 am. It wasn't the horrific screaming pain, it was just continual low level pain. We were both up most the night trying to keep her hurt under control.

It didn't help much that our nurse had terrible bedside manner, not to mention her forgetting and/or not wanting to sanitize her hands most of the times she came and went from our room. Sanitizing is mandatory for everybody coming and going from every child's room on this ward. It was just a couple days ago that India was on "limited contact" status. This "limited contact" was to protect India from being exposed to viruses because she was so weak.

India is finally sleeping now. I got her to eat some breakfast before she conked out. My little girl is very pale, more than normal. I'm feeling really frustrated. It seems like we've made very little progress since we came to University of New Mexico Children's Hospital.

Day 4 - UNM Hospital, The Pain Isn't Going Away

India isn't doing very well.  Her pain is back and wearing her out. None of the narcotics are working.

The doctors now think it's possibly nerve damage of some sort. They are moving to a different group of drugs that focus on the nerves. 

India and I didn't sleep again last night for the exception of 10 minutes her and 20 minutes there. We are exhausted beyond belief. The major pain last night started at 2:00 am. She is just now calming down.

My little girl can only handle so much.

Day 2 - UNM Hospital, Nightmare

India had the worst pain attacks she's ever had in her life today. When it happened, they were so jolting that the physical reaction for those who were in the hospital room was frightening. And the pain didn't stop. She screamed in agony for most of the day, into the night and early morning.

I prepared myself at one point for my little girl to die. I could see the sparkle in her eyes disappear, She had never done that before.

Late in the evening, India began to moan. We realized that her IV had failed and the IV fluids were filling her wrist, hand and forearm with fluids. Her forearm began to look like a balloon.

So at 1:30 am, doctors and nurses were trying to place a new line. It took them hours and my child being stuck with needles over and over. They brought in an ultrasound to locate a good vein which didn't help.  A line was finally placed in India's shoulder.

Her arms are riddled with puncture marks from failed attempts to place an IV...

Day 22 In Boston - The Day Started Good But Ended With Some Pain

India was a happy camper today until about 5:00; when the pain kicked in.

I'm grabbing India some good dinner, will get her super cozy and we will watch "Mamma Mia" for the 5th time today.

Tomorrow is going to be a rough and painful day. The doctors are going to try to remove her traction.

I'm keeping my fingers crossed that it goes smoothly.

We are grateful for any donations.