Friday, January 24, 2014

Day 6 In Boston - Update

This week after a very long trip, Indias body not being kind to her and not enough rest for either of us; we've been given no break - except from an old pal (

We also happened to be in Boston during a very, very cold weather system where the temperature in this area hit below "zero".

I've had a lot of paperwork to fill out, enough to level a forest. And dozens of calls, texts, im's and emails to respond to that I literally can't find the time for.

To make matters worse, the Dementor has shown absolutely no support in anyway. And in fact, has been on the attack and will NOT stop.  

If you recall, the Dementor attempted to block India's last procedure here at Harvard Boston Children's Hospital, a procedure that changed India's life in the most beautiful ways. 

I realized as I wrote this post that the Dementor has yet to ask how India is doing. I guess Dementors are just terrible narcissists without concern. 

("Dementors are among the foulest creatures that walk this earth. They infest the darkest, filthiest places, they glory in decay and despair, they drain peace, hope, and happiness out of the air around them... Get too near a Dementor and every good feeling, every happy memory will be sucked out of you. If it can, the Dementor will feed on you long enough to reduce you to something like itself...soulless and evil. You will be left with nothing but the worst experiences of your life.") Remus Lupin to Harry Potter[src]

So to move on, in the past few days, India has had blood tests, physical exams, detailed questions - over and over. India has also endured oncology radiation at the "Dana Farber Cancer Institute" ( ensure no rouge bone growths after surgery.

I’m worried about the upcoming surgery but also very hopeful. If everything turns out the way the doctors say it will, India will be pretty comfortable after she heals from this procedure.

And the goal of the medical team is for India to be able to have the ability to "dance", "ski" and enjoy life again.

Vikki and I being India's parents who get up every single morning when the sun rises to stretch her. And do the same after the day is done and India is ready for bed proudly shoulder this honor.

We find ourselves worn out in every way imaginable; beaten down if you may. But we would not for a moment do anything other than what must be done.  These are our shoes and we wear them with love and dedication.

India, Marion, Nikki, Abbie, Gonad the Cat and Carwash the Pigeon are in good hands and loved.

And Monday morning, India is going to receive the best help possible in the world for her condition. 


P.S. We are still in serious need.  This ranges from moral and spiritual support to financial assistance.