Day 15 - UNM Hospital, Nice Visit

Nice time with Vikki and aunt Amber.

Day 14 - UNM Hospital, A Pain Free Photo

This is a glimpse at what my baby girl looks like without any pain.

She is in the therapy tub at UNM Hospital listening to Lorde "Tennis Court"...

Day 14 - UNM Hospital, Problems

India isn't well. 

We've watched as her left hip has started to protrude over the past few days. On this same hip, she now has 6 sutures protruding through her skin. This is the same hip/leg that is causing her so much pain.

This morning during rounds, the doctor noticed that this same hip was hot. The doctor ordered a large series of blood tests, CAT Scan and MRI.

The doctor returned 15 minutes later and India's leg had become hotter. The doctor immediately put in an IV to draw bold. She didn't want to wait on anybody to do the IV based on India's condition.

It's going to be a long weekend.

Day 13 - UNM Hospital, "Daniel & India" Reunion!

After months, India and Daniel had their reunion.  

India was absolutely exhausted at the time after a long day. But you can see the joy and love. She lasted about an hour and is still talking about it.

Day 12 - UNM Hospital, "Crash, Boom, Bang"

Yesterday was absolutely brutal. India had major pain, we didn't sleep, it took the doctor 7 hours to come see us, we had to go through a new series of X-rays trying to pinpoint what's going on in India's little body and the hospital food SUCKS.

To add insult to injury, a helicopter crashed into our building just above our room. I thought it was a wind gust that made the building vibrate. Nobody was hurt but the hospital staff behaved as if Martians had landed, were eating the newborn children and a few of the geriatric patients.

India's best friend Kate was pulling up to the hospital with her mom and sister just after the crash. They'd made the 45 minute drive to come visit India to only be turned away 100 yards from our room. 

The reason given for not being allowed to visit India was vague and Kate's little sister left with the impression that somebody might shoot India, thus the reason for all the police. She was quite worried.

Day 11 - UNM Hospital, Doctor - Doctor!

This has been absolutley horrible for my daughter. We were up almost all night last night trying to control her pain. It became so bad that at 6:30 am that I asked for a doctor to come help immediatley. It was clear that we were headed down a very dangerous path that could be a life ending event for my child. 

It's now 1:04 pm MST, headed towards 7 hours since India was screaming in pain and I was asking for the doctor to come help; NO DOCTOR AS OF YET.

We did get an additional 2 mg's of Diazapam from the doctor who had to be tracked down and would only reply by phone. 2 mg's of Diazapam is a rediculously low dose, even when added onto her current scheduled quantities. 

My child was in so much pain that her shirt was drenched in sweat and she was trembling from the hurt. How the hell can a hospital and/or doctor not see this as an emergency. Especially considering that they are aware she is very medically fragile?

Day 11 - UNM Hospital, Not Good

It's 3:30 am and India has been having bad, bad pain. At first I thought she was just exhausted and being whiny. But after awhile, I checked her closely to find her body was wet from being in pain.

We administered pain meds and I curled up in bed with her to try and comfort my little girl.

There is something very wrong that is causing this terrible hurt in her little body so long after her surgery.

It's 7:00 am and India just quit screaming in pain. She is sleeping now as we wait for the doctors to arrive.

She was drenched in sweat and trembling as she said "help me daddy please" over and over for the past few hours.

Day 10 - UNM Hospital, ABC News

Day 6, 7, 8 - UNM Hospital, Update

The last 3 days have had some beautiful moments.

India had a suprise visit from her boyfriends mother. Daniels mother came to the hospital to let India know that daniel is going to come visit her this coming week.  India couldn't stop smiling as she stared out the window thinking about her love.

India's teachers Mrs. Lydia and Mr. Stuart dropped in to see their good friend. When they came into the room, India couldn't believe what she was seeing was real.

My dear friend Ray made the 600 mile drive to come support me and my family. I can't begin to say just how much his being here helped us. 

Day 5 - UNM Hospital - Pretty Good Day

India slept a whole lot today. We aren't sure if it's from her new meds or if it's from exhaustion brought on by the horrible pain she's been experiencing. 

She had another IV line fail, causing her arm to swell up with fluids. It's the 6th line to go bad in 4 days and this one was very painful. You can see in the photos below that India is holding her arm tightly.

India's weight is a huge concern, she is hovering around 55 pounds at 15 years of age. I put out a post on Facebook asking family and friends to bring food to the hospital so I could fatten India up. My little girl just isn't very interested in hospital food. And to be honest, we were both lonely and wanted some company.

I guess the past year has taken it's toll on me. I was told tonight that I was looking "chunky" by my old pal Barbara from Garcias on Central and my friend "Heidi" aka "1 of 9" said that I was looking old...

I'm hoping for another good day tomorrow, we deserve it.

Our view just before sunrise.

India trying to work the pain out of her arm after the IV failed.

India's swollen arm from the IV failing.

I wonder if this is how India sees her shadow.

Crazy Buddhist sister having dinner with India.