So India had a good night last night and was a happy camper when she woke up this morning. I had to position her ever 45 minutes during the...

Last night was very long and India didn't sleep much. You can see how wiped out she was this morning in the above photo. She had a ...

I was asked today what it cost to be in hospitals for 115 days. This is a hard question to answer in some ways.  The quick answer is ...

On April 10th of this year, a helicopter crashed into the roof of our hospital; not far from our room.   So I have to admit, when ...

India has had a difficult time holding down food lately. In fact, she's hardly eaten at all. She is already underweight so this has...

The day is coming to an end and it's a day I'm looking forward to it being in my rear view mirror. Not long after India's ...

India's pain hit again for a 3rd time tonight and this was bout was the worst yet. They had to put in an IV line so they could admi...

India's had a second and even harsher bout of pain tonight.  The first one was bad, the second one ended with India vomiting. She...

Not long after India fell asleep tonight, she began to have discomfort. This isn't unusual and one of the reasons I stay with her a...

One of the reasons India had the type of surgery she did this year in Boston is that it gives her a chance to dance again. As you can...

This year is taking its toll on Marion, we don't get to spend much time together. 10 days ago, I took her to Colorado to have some one-o...

India is doing well, she is sleeping a lot and in good spirits.

India had another painful night. We had to give her Oxy again. This isn't an easy decision on many levels.  This morning, when she woke ...

I'm sitting next to India as she sleeps.  Tomorrow she has surgery. I'm so scared  for my little girl.  She keeps saying "no...