India is out of the hospital, she has been since the beginning of the semester. India is enjoying life - school, her boyfriend Daniel and her brother and sisters. It's wonderful to see her out of the hospital bed after all that time.
I've not written about India or our life for a few months now, I've not written at all. In fact, I cut off almost all social media and took a break. Break is over now, I'm back to writing and will pick up where I left off this summer. But for now, I'm going to bed after a great evening with my children.
India had a bad night again. It seems like every time we see a light at the end of the tunnel, it's followed by serious darkness.
She had steady pain from 10:00 pm until about 8:00 am. It wasn't the horrific screaming pain, it was just continual low level pain. We were both up most the night trying to keep her hurt under control.
It didn't help much that our nurse had terrible bedside manner, not to mention her forgetting and/or not wanting to sanitize her hands most of the times she came and went from our room. Sanitizing is mandatory for everybody coming and going from every child's room on this ward. It was just a couple days ago that India was on "limited contact" status. This "limited contact" was to protect India from being exposed to viruses because she was so weak.
India is finally sleeping now. I got her to eat some breakfast before she conked out. My little girl is very pale, more than normal. I'm feeling really frustrated. It seems like we've made very little progress since we came to University of New Mexico Children's Hospital.